Dedicated dad takes on challenge for poorly son

Dedicated dad takes on challenge for poorly son

Dedicated dad takes on challenge for poorly son

Dedicated dad takes on challenge for poorly son

First published in News

A DEDICATED dad has embarked on a mission to raise funds and awareness for the disease his son suffers from.

Ian Bramhall was speechless — and then delighted — when his partner Gemma revealed she was pregnant, and on July 18, 2012, the couple had a seemingly healthy baby boy.

But a few days after the couple brought Riley home, he was back in hospital again, where he was diagnosed with Hirschsprung’s Disease, a disorder of the abdomen.

Mr Bramhall said: “It has been difficult and it is still difficult, but it does not outweigh the joy that he gives us. It was well worth it.

“The hardest part was about this time last year when his bowel ruptured and we very nearly lost him.

“He still has challenges to face and that’s why, when I found out about Champs Appeal, I decided to try to raise some money for them.

“I can’t run any more, so I thought why not cycle.

“My best friend Ryan Heapy said he would help.”

One-year-old Riley has undergone several operations and had the defective part of his intestine removed, but Mr Bramhall said the toddler now suffers from terrible nappy rash.

He requires a special cream called iLex to help soothe the symptoms, but this is not available on the NHS — something his 28-year-old dad has been campaigning to change to help other families in a similar situation.

Mr Bramhall, of Askrigg Close, Atherton, who works in commercial sales, said: “Riley’s nappies are so acidic that it literally burns his skin away to leave the flesh red raw, bloody and extremely painful.

“What the future holds for Riley is unclear, but what we do know is he is a little character.”

Ian and Ryan completed a 60-mile bike ride from Leigh to Formby on March 30 in the hope of raising £750 for Champs Appeal, which aims to raise awareness of the condition.

To donate, visit justgiving.com/ian-bramhall.

Comments (3)

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9:54am Sat 19 Apr 14

sueie1 says...

What a beautiful boy, he is only a couple of weeks older than my son, I couldn't imagine how the parents must feel and something that helps his nappy rash should be available on the NHS, anything that will help a child in pain should be! I hope it starts to improve when Riley is toilet trained. Good on the dad too, your son will be very proud of you
What a beautiful boy, he is only a couple of weeks older than my son, I couldn't imagine how the parents must feel and something that helps his nappy rash should be available on the NHS, anything that will help a child in pain should be! I hope it starts to improve when Riley is toilet trained. Good on the dad too, your son will be very proud of you sueie1
  • Score: 2

11:04am Sat 19 Apr 14

Diamonintherough says...

There are so many things not available on the NHS my baby requires a skin treatment which is not available and only sold in one shop its very frustrating. Good luck for the future!
There are so many things not available on the NHS my baby requires a skin treatment which is not available and only sold in one shop its very frustrating. Good luck for the future! Diamonintherough
  • Score: 2

8:31pm Sun 20 Apr 14

Sparkle00 says...

Our son was born with Hirschsprung's disease , admitted to hospital at 3 days old ,the first year was very stressful & very worrying.. He had 4 operations but the staff at Manchester pendlebury & then mcr childrens hospital were amazing as well as his surgeon Dr Bowen. Forever grateful.

Our son is now a very active and sociable 7 year old & all that reminds us of his condition mostly is the scar.
Our story is a positive one but we talk to our son about his condition and how ill he was at birth. We tell him "never be ashamed of a scar. it simply means you were stronger than what tried to hurt you".
A positive comment we were given during our most dark days was that, his engine is fine. It's just his exhaust that needs a little work.

Good luck to the Bramhall family xx
Our son was born with Hirschsprung's disease , admitted to hospital at 3 days old ,the first year was very stressful & very worrying.. He had 4 operations but the staff at Manchester pendlebury & then mcr childrens hospital were amazing as well as his surgeon Dr Bowen. Forever grateful. Our son is now a very active and sociable 7 year old & all that reminds us of his condition mostly is the scar. Our story is a positive one but we talk to our son about his condition and how ill he was at birth. We tell him "never be ashamed of a scar. it simply means you were stronger than what tried to hurt you". A positive comment we were given during our most dark days was that, his engine is fine. It's just his exhaust that needs a little work. Good luck to the Bramhall family xx Sparkle00
  • Score: 1

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